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What Having Vascular Ehlers-Danlos is Teaching Me About Bucket-List Living | www.therescuedletters.com
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What Having Vascular Ehlers-Danlos is Teaching Me About Bucket-List Living

“Prepare your bucket list and live your life well.” -My Doctor Almost two years ago, these were the words I received with my diagnosis of Vascular Ehlers-Danlos Syndrome. There is no cure or treatment for vEDS. And because the life-expectancy of someone with vEDS is cut short, bucket-list living quickly shifted to the forefront of […]

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The Rescued Letters Collective is a united front of Christian ministries with a shared vision: to help women everywhere cultivate a richer faith. 

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Professional dry shampoo user who loves the Bible, total Disney nerd with an overdue library account. Laundry is not my spiritual gift. 

Diagnosed with an incurable genetic disorder that I inherited from my mom, I know what it's like living with a story that is not easy. I've got a slew of major medical events in my chart. Oh and my doctors tell me that my life expectancy with vEDS is 48. So there’s that.

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